Sunday, December 21, 2014

Sprinkles the Elf {Day 23}

It took the girls a little bit longer to find her this morning but they loved her watching them eat donuts for breakfast!
Emma said "That's not a good idea! Sprinkles is going to break her leg!"

To see Sprinkles past mischief click here.

Sprinkles the Elf {Day 22}

Yesterday the girls were excited to see how close we are to Christmas!
Thank you Sprinkles for reminding me how far behind I am this year! Ready or not...Christmas is coming!!

To see Sprinkles past mischief click here.

Friday, December 19, 2014

Georgia - Upper GI

The same afternoon of Georgia's 6 month appointment the pediatrician called me. She had called the pediatric radiologist at the children's hospital and spoke with him regarding what testing we should focus on for Georgia. He said we needed to start with an Upper GI to rule out malformations.

I was told Georgia had to be fasting for 4 hours for this procedure. When I told our nurse who was helping me schedule the exam that she last fed at 11am she got Georgia in for a 2:30 registration & 3pm appt. I left the girls with Cody and headed to the hospital.

I got Georgia registered fairly quickly but we did have to wait a bit for radiology to come get us. At this point Georgia was hungry and I wasn't allowed to feed her. When they came to get us I was relieved knowing she would get to eat once this was over.

They had me take her shirt off and put a baby hospital gown on and he began to explain the steps of the upper GI.
The radiologist came in and spoke with me briefly before starting. They offered Georgia the contrast to drink in a bottle. She was already screaming on the xray table and totally refused the bottle. So I got to syringe feed her the contrast while she was screaming and thrashing around. They took a series of xrays and then it was over. It really wasn't that invasive but Georgia wasn't having it!

The radiologist told me she refluxed twice mildly and that her anatomy was normal with NO malformations. This does not answer the intestinal bleeding and painful screaming.

I wasn't about to drive home in traffic with a screaming, hungry baby so I sat in a chair in the hall near some vending machines and fed her.

That evening our pediatrician called me after receiving the radiology report. She wants Georgia to restart her reflux medicine (once a day vs. twice like before) since she does have proven reflux. She reiterated this didn't address the cause of the bleeding but she felt reassured knowing she wasn't dealing with twisting and needing immediate surgery.

The plan for now is to wait for the lab work to come back before deciding the next step. Praying for quick results and an answer so we can begin healing!

Sprinkles the Elf {Day 21}

This is what we saw when we opened the fridge today!

To see Sprinkles past mischief click here

Thursday, December 18, 2014

Georgia's 6 Month Appointment

I took Georgia to her 6 month "well check" this morning. The good news is she is hitting all her milestones and is growing well!

Weight: 16.5 pounds (52%)
Length: 26 inches (49%)
Head: 18.2 inches (>99%)

Her head measurement is off the curve like she was at 4 months but she is hugging the line so far. We are watching to see if her future measurements make the curve of if she jumps off the chart and needs a cranial ultrasound.

On the flip side:

I told the pediatrician she has gotten worse over the past week. I had brought additional diapers for blood sampling and she is still + for blood. She does not think she has been bleeding this whole time because she said she would have expected her to be anemic in the past blood work. She does think this intestinal issue is a new acute concern.

I showed her an area right on her tailbone where she has developed an interesting rash. Her comment was "its not an ordinary diaper rash" and that you would expect to see it all her bottom, which it isn't. The rash blanches with touch. So I am watching that - we really aren't sure yet.

I told her I wasn't convinced this issue is a milk allergy. She completely agreed and said she's not so sure either but I do have continue eating dairy free while she is having intestinal bleeding because her stomach can't handle it. I asked her how could this be Colitis if her CRP was negative in the past lab work. She also agreed that it would have been elevated.

Then we started talking other possible causes...

For whatever reason, Giardia was not tested for with the last stool culture. So we are re-sending samples and re-checking for all parasites. She said they like more than one sample anyway in case they didn't get one (a parasite) in the 1st round. She is also adding in a C. diff order even though she has never been on antibiotics. She also mentioned some really rare options that she said she would add to the order.

I brought up the option of her intestinal wall folding over. She said we would be seeing gross blood in her diapers, which we have not. I have not seen blood in her diaper at all - but it is there microscopically. We both palpated on her abdomen and couldn't illicit any kind of grimace response.

When I told her she arches her back and screams in pain intermittently she said this sounded just like what she went through with her son who had volvulus (intestinal twisting). She said her sons was from scar tissue though. She said he needed exploratory surgery to find and treat it. I could tell she was trying not to scare me.

I asked if they could do an allergy test on her this young for milk/soy, etc. and she said it is approved for 6 months and up and is through blood work. She said we can develop and allergy at anytime (which implied if everything was negative now it wouldn't mean on day she would be allergic to peanuts, for example). I requested the allergy testing and she agreed. This way we would know 1) this is definitely the cause or 2) something else is wrong

Once again it took 2 needle sticks to get blood from Georgia. She was SCREAMING as hard as she could. I told them "this" is the cry at home I am dealing with. Georgia was sweating from putting up a fight with me holding her down and the nurses poking her. At this moment - I cried. My heart breaks for her and is so heavy knowing she is hurting.

The nurse gave me a moment to recompose and feed Georgia so she would calm down before her 6  month shots. She offered holding off a week on the shots but I honestly don't know that things will be any better then. We decided to give all her 6 mo vaccines (except for Hep B) + the 1st round of flu vaccine. She said we could give Hep B when we come back for the 2nd round of flu vaccine in a month.

When our pedi came back in and I told her "that is the cry". She said, lets get her in for the scans then. She said she would call the Radiologist to discuss with them what all should be done. We could do a simple abdominal ultrasound and/or we could get invasive and do a CT with sedation. She said she would be calling me back regarding a radiology work up at Methodist Children's Hospital. I told her if there happened to be a cancellation today - I could take her in. I doubt however, we will get that lucky.
For now, shes at home with 4 band aids and resting peacefully.

 Please pray for Georgia!

Sprinkles the Elf {Day 20}

Sprinkles must have heard Reese asking when we would be making our annual gingerbread house!
Thank you Sprinkles!

Wednesday, December 17, 2014

Sprinkles the Elf {Day 19}

Um, excuse me Sprinkles but that present says NO PEEKING!

To see Sprinkles past mischief click here.